ICD-11

The ICD-11 is the eleventh revision of the International Classification of Diseases (ICD). It replaces the ICD-10 as the global standard for recording health information and causes of death. The ICD is developed and annually updated by the World Health Organization (WHO). Development of the ICD-11 started in 2007[1] and spanned over a decade of work, involving over 300 specialists from 55 countries divided into 30 work groups,[2][3][4] with an additional 10,000 proposals from people all over the world.[5] Following an alpha version in May 2011 and a beta draft in May 2012, a stable version of the ICD-11 was released on 18 June 2018,[6] and officially endorsed by all WHO members during the 72nd World Health Assembly on 25 May 2019.[7]

The ICD-11 is a large ontology consisting of about 85,000 entities, also called classes or nodes. An entity can be anything that is relevant to health care. It usually represents a disease or a pathogen, but it can also be an isolated symptom or (developmental) anomaly of the body. There are also classes for reasons for contact with health services, social circumstances of the patient, and external causes of injury or death. The ICD-11 is part of the WHO-FIC, a family of medical classifications. The WHO-FIC contains the Foundation Component, which comprises all entities of all classifications endorsed by the WHO. The Foundation is the common core from which all classifications are derived. For example, the ICD-O is a derivative classification optimized for use in oncology. The primary derivative of the Foundation is called the ICD-11 MMS, and it is this system that is commonly referred to as simply "the ICD-11".[8] MMS stands for Mortality and Morbidity Statistics. The ICD-11 is distributed under a Creative Commons BY-ND license.[9]

The ICD-11 officially came into effect on 1 January 2022.[10] In February 2022, the WHO stated that 35 countries were actively using the ICD-11.[11] On 14 February 2023, they reported that 64 countries were "in different stages of ICD-11 implementation".[12] According to a JAMA article from July 2023, implementation in the United States would at minimum require 4 to 5 years.[13]

The ICD-11 MMS can be viewed online on the WHO's website. Aside from this, the site offers two maintenance platforms: the ICD-11 Maintenance Platform, and the WHO-FIC Foundation Maintenance Platform. Users can submit evidence-based suggestions for the improvement of the WHO-FIC, i.e. the ICD-11, the ICF, and the ICHI.

  1. ^ Rodrigues, Jean-Marie; Schulz, Stefan; Rector, Alan; Spackman, Kent; Üstün, Bedirhan; Chute, Christopher G.; Della Mea, Vincenzo; Millar, Jane; Brand Persson, Kristina (2013). "Sharing Ontology between ICD 11 and SNOMED CT will enable Seamless Re-use and Semantic Interoperability". Medinfo 2013. 192 (Medinfo 2013): 343–346. doi:10.3233/978-1-61499-289-9-343.
  2. ^ Badr A (17–19 September 2019). Fifth regional steering group meeting Bangkok (PDF) (Report). WHO/EMRO.
  3. ^ Pickett D, Anderson RN (18 July 2018). Status on ICD-11: The WHO Launch (PDF) (Report). CDC/NCHS.
  4. ^ Cuncic A (23 March 2020). "Overview of the ICD-11 for Mental Health". Verywell Mind. Archived from the original on 5 April 2020.
  5. ^ "WHO releases new International Classification of Diseases (ICD 11)" (Press release). Geneva, Switzerland: WHO. 18 June 2018. Archived from the original on 31 May 2019.
  6. ^ "ICD-11 Timeline". who.int. Archived from the original on 5 May 2019.
  7. ^ "World Health Assembly Update, 25 May 2019" (Press release). Geneva, Switzerland: WHO. 25 May 2019. Archived from the original on 30 July 2019.
  8. ^ Chute CG (May 2018). "The rendering of human phenotype and rare diseases in ICD-11". Journal of Inherited Metabolic Disease. 41 (3): 563–569. doi:10.1007/s10545-018-0172-5. PMC 5959961. PMID 29600497. The primary linearization, and the one most users will recognize and likely believe is "the ICD-11", is the Mortality and Morbidity Statistics (MMS) linearization.
  9. ^ WHO. "Terms of Use and License Agreement" (PDF). icd.who.int. Archived (PDF) from the original on 10 September 2021.
  10. ^ WHO. "International Classification of Diseases (ICD)". www.who.int. Archived from the original on 4 February 2022. The latest version of the ICD, ICD-11, was adopted by the 72nd World Health Assembly in 2019 and came into effect on 1 January 2022.
  11. ^ WHO (11 February 2022). "ICD-11 2022 release". www.who.int. Archived from the original on 10 February 2022.
  12. ^ WHO. "ICD-11 2023 release is here". www.who.int. Archived from the original on 8 December 2023.
  13. ^ Feinstein, James A.; Gill, Peter J.; Anderson, Brett R. (28 July 2023). "Preparing for the International Classification of Diseases, 11th Revision (ICD-11) in the US Health Care System". JAMA Health Forum. doi:10.1001/jamahealthforum.2023.2253. PMC 10495107.

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