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| Founded | 1983 |
|---|---|
| Legal status | 501(c)(3) nonprofit organization |
| Headquarters | 55 Kenosia Avenue, Danbury, Connecticut[1] |
| Services | provide support for individuals with rare diseases by advocating and funding research, education, and networking among service providers. |
President and CEO | Peter Saltonstall |
| Website | rarediseases |
The National Organization for Rare Disorders (NORD) is a nonprofit organization, based in Connecticut,[1] aiming to provide support for individuals with rare diseases by advocating and funding research, education, and networking among service providers.[2] It was founded in 1983 by Abbey Meyers, along with individuals and rare diseases leaders of rare disease support groups, and it is a 501(c)(3) tax exempt organization.[2][3][4]
- ^ a b "National Organization for Rare Disorders (NORD)". NIDCD. 23 June 2020. Retrieved 30 September 2023.
- ^ a b "About NORD". National Organization of Rare Diseases. 30 July 2008. Archived from the original on 17 February 2009. Retrieved 14 February 2009.
- ^ "The National Organization for Rare Disorders (NORD) Names Peter Saltonstall New President". Reuters. 5 May 2008. Archived from the original on 4 January 2013. Retrieved 14 February 2009.
- ^ "Episode 329: Orphan Drugs". 99% Invisible. 13 November 2018. Retrieved 18 November 2018.
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